Mesothelioma patients need support. There are foundations across the US ready to help, as well as in-person, phone, or online support groups available.

Family and Patient Support Options

There are many support options available for patients with all types of mesothelioma. Most of these are not for profit groups who are very active in mesothelioma research. There are support groups available in person or online. Some of these support groups cater to both the patient and their families. Others are more directed at those who have lost a loved one to mesothelioma.

Benefits of Mesothelioma Support Groups

  • People Who Can Empathize

    These groups are made up of other patients and families who have had to deal with the stress of a cancer diagnosis—people who can truly empathize with each other.

  • Peace of Mind

    Knowing that others have experienced the same tribulations offers a sense of relief. This can also offer hope to families and patients, knowing they aren’t alone.

  • Creating Bonds

    Support groups also create bonds between people. This kind of support can be invaluable for patients and families, giving them courage, comfort, or closure.

Get Help Finding a Support Group

We can help you locate a support group specifically for mesothelioma patients and families. Our patient advocates have built connections with support groups across the country and are trained to assist you every step of the way.

Choosing to participate in a support group can help you:

  • Learn what to expect from treatment
  • Gain peace of mind
  • Relieve stress and strengthen relationships


Why Support Groups?

Support groups can help mesothelioma patients stay positive and put faith in treatment. Mesothelioma is rare, so finding a support group can be tough—it’s simply harder to come across other people diagnosed with this disease. However, mesothelioma patients from across the country can come together via the internet and conference calls. Through support groups, patients can share their stories and meet others going through the same hardships.

Support groups are important because they:

  • Can reduce the stress of a diagnosis
  • Provide inspiration and hope
  • Offer comfort and acceptance
  • Give a sense of community
  • Are made up of people who can empathize with each other
  • Let patients know they are not alone

Most mesothelioma survivors have all said that it’s important to get support from friends, family and other patients.

“I say a lot of it’s having a good attitude and asking for support and letting people help you.” – Kendra Ferreira, mesothelioma survivor

Treatment for mesothelioma can be hard, but for most patients, it’s worth it. Getting support from those who have experienced treatment for themselves can be reassuring that going through it is the right choice. Studies on cancer patients who participate in support groups have even shown that they experience less pain from their disease and are more content with life.

Mesothelioma patients can also find support through our Mesothelioma Survivors Guide, featuring detailed interviews with survivors who have dealt with all the suffering of a diagnosis. Get a free copy of our Mesothelioma Survivor’s Guide today.

Support groups can also be beneficial for family members. There is no question that family members feel the burden of a mesothelioma diagnosis as well, and it’s something that should be addressed. Connecting with other family members can ease this stress and reignite the will to fully support their loved one. Studies have even shown that patients and families attending support groups have better relationships and are more capable of dealing with adversity.

If you have more questions about mesothelioma support groups, refer to our support groups FAQ.

Mesothelioma Support Foundations

  • The Meso Foundation (formerly MARF)

    The Meso Foundation is a non-profit collection of patients, families, physicians, advocates, and researchers focused on ending mesothelioma.

  • International Mesothelioma Interest Group (IMIG)

    The International Mesothelioma Interest Group represents an independent group of scientists focused on expanding mesothelioma research, developing cures and finding treatment solutions.

  • Canadian Mesothelioma Foundation (CMF)

    The Canadian Mesothelioma Foundation (CMF) offers private, invite-only online support groups for mesothelioma patients, caregivers, family and the bereaved. For information on how to join visit the CMF website.

Specific Support Groups

Support groups provide an invaluable resource to mesothelioma patients. These groups offer a place to express your concerns, but also a place to receive encouragement from other survivors, caregivers, or current patients.

  • Brigham & Women’s Hospital, Boston, MA

    Mesothelioma Orientation Group

This group is an orientation program for patients newly diagnosed with mesothelioma. Patients are presented with information from Dr. Sugarbaker, the research team, social work and chaplaincy.

Contact: Charlene Haouiliya, LICSW at 617-732-5500 ext 32819. Meetings: Tuesdays 8:30-10:30am.

Mesothelioma Support Group for Family Members

Group is co-led by Social Work and Chaplaincy.
A support group for family members of patients diagnosed with mesothelioma. A focused discussion about caregiver issues and encouraging good self-care.

Contact: Charlene Haouiliya, LICSW at 617-732-5500 ext 32819.
Meetings: Wednesdays from 12-1:00pm in the Multipurpose Room on the 11th floor. Lunch is served.

Phone-Based Support Groups

Hearing a comforting voice of someone who understands what you’re going through is very helpful. A series of phone-based support groups that you can join are listed below.

Mesothelioma Foundation Phone Groups

The Mesothelioma Foundation offers a variety of options for patients to take part in teleconference-style support groups.
Visit the Mesothelioma Foundation website

Cancer Support Helpline

The Cancer Support Community offers support for those that have been recently diagnosed or are long-time cancer patients.
Visit the Cancer Support Community website.

Online Support Groups

Many people who have just been diagnosed with mesothelioma will turn to the internet to find answers to their questions. While we offer a wide-array of information and support (such as our Mesothelioma Guide), online support groups give patients a first-hand opportunity to tell their stories and share their experience.

Message Boards

Message boards and forums for cancer-related issues are a place where people come together and thrive as a community. You can get involved and start sharing today.

2017 Support Events

National Mesothelioma Awareness Day

September 26th, 2017

Global Asbestos Awareness Week

April 1-7, 2017

The 2017 International Symposium on Malignant Mesothelioma

March 27-29, 2017 – Bethesda, MD
The Meso Foundation’s symposium is a 3 day event featuring scientists, medical professionals, and mesothelioma advocates.
View more information on the Meso Foundation website.

International Asbestos Awareness and Prevention Conference

April 7–9, 2017 – Washington D.C.
The Asbestos Disease Awareness Organization’s conference features speakers from diverse backgrounds who hope to spread awareness about asbestos diseases.
View more information on the ADAO website.

Julia’s Race to Help Cure Meso

May 13, 2017 – Santa Ynez, CA
This event is in honor of Patty Forgiewill and takes place at 7AM.
For more information contact Julia Forgie at jforgie@gmail.com.

Al Amigoni “Grand Poobah” Memorial Open Golf Scramble & Dinner

June 17, 2017 – Euclid, OH
This event begins at 10AM.
For more information contact Tina Meza or Jason Heil at 216-225-6295.

Washington Memorial 5k Run/Walk

July 4, 2017 – Federal Way, WA
This 5K is in memory of Dick Dyhrman, Bud Hatley, and Bob Stewart. Proceeds will go to the Mesothelioma Applied Research Foundation. For more information contact Kimberly Shelton at 253-835-6932 or visit the event web page. The event begins at 9AM.

Walk to Cure Meso

September 17, 2017 – East Meadow, NY
The walk will take place at Eisenhower Park. Sign-ups start at 9AM and the walk begins at 10AM.
For more information contact Erica Iacono at eiacono@gmail.com

John Boy Memorial Golf Tournament

September 30, 2017 – River Falls, WI
This tournament is being held in memory of John R. Slagle. It begins at 9AM.
For more information contact Vicki Slagle at vickislagle@gmail.com.